Friday, January 16, 2009

Friday, January 16, 2009

Today at 10 AM I had a meeting with my physiotherapist or was it my ergo therapist? I don't know there's so many of them that after a while they all look the same. It was to be the final evaluation regarding my Van and of course they found some improvements that could be made. Not to be sarcastic but why don't you try solving this MS problem and then I wouldn't have to rely on these adaptations which cost a fortune and are frustrating as hell to use. I know I'm not being realistic but right now at this very moment I'm ticked off I'm tired of this plain and simple.
Both of them came ladies who are always pleasant and polite and we spent hours trying this and that in the van to come up with ideal solutions to what I interpret as trivial concerns. My seatbelt did not fit properly or exactly as it should, in a frontal collision I don't think it would matter that much considering that I am driving the vehicle from a wheelchair which has certainly not been crash tested. To them it was very important to me well it didn't carry much weight similar to flying in an airplane when they ask you to fasten your seatbelts for landing. At that speed what would it matter other than making it easier to identify the bodies.
In any case it's a done they are gone and now I sit waiting for an electrician who should be coming by between 12 and 12:30 PM mind you it is now 1:30 PM and I'm getting tired of waiting.
I should also mention not that it's a big thing but it goes hand-in-hand with ms and that is that my bladder decided it was time to empty itself just as the two therapists were leaving. This means that at this moment I am sitting in front of the computer with a diaper that is overflowing, my pants are wet and I am literally pissed off. I'm sorry to sound negative but in some cases MS sucks big time! I'll wait another half hour and if the electrician doesn't show up at least I'll take my diaper and pants off and try to clean myself as best I can. I'm afraid to take a shower when my spouse isn't around because if I fall I know it will be extremely difficult for me to get up or move in any way.
I hope you never have to live through this and I would not wish this on my worst enemy not that I have any but still I would not wish it on anyone nor would I we willing to pass it on to anyone. If this is meant as my mountain to climb I would've settled for Everest because this is one hell of a mountain.


Anonymous said...

I feel your "pain"! I go through fairly often being annoyed with my self. I used to have a good life, a job, a good marriage, and freedom to dom and go, but all of that seemed to come "crashing down" with I stared having problems and getting diagnosed with this darn disease!I wish there was some way to get tid of it, or even to bring back some of the things I have lost! I'm just I haven't lost me sense of humour becausem a fea years ago, I bought a book that ssid the first case of diagnosed MS was in Holland, long, long ago, and my first name actually is Tineke which came from Holland! I guess my ancestors must have CURSED me!

MikeH said...

Thank you so much for your comment. I certainly know that you feel my pain but in all honesty you have gone through more than I. You have hit the nail on the head when you speak of humor as it plays such an important part in remaining positive no matter what.
If I were you I would pray that they never prove your family was in some way responsible for this disease as if this came to be I would run to catch you. LOL
PS: I've never been out east but wouldn't it be a perfect opportunity.
Keep smiling
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