What I have is primary progressive multiple sclerosis. Having never experienced a relapse it is impossible for me to relate to relapsing remitting multiple sclerosis. Even secondary progressive multiple sclerosis is different.
Unlike what some scientists believe the different variations of the disease are at least according to me simple variations, inconsequential in the long term.
It appears for the most part the disease is nondiscriminatory in it's outcome. We can predict with near pinpoint accuracy the eventual outcome for 97% of persons afflicted with this disease. This in part thanks to statistical medicine which is nothing more than vasts amounts of data representing thousands of patient years.
This made possible given our current computer/database resources monitoring hundreds of thousands of patients with the same condition.
We end up with a fairly acurate prognosis.
Turns out it's a blueprint in essence one which spells out when the disease will progress, how long it will take to progress and finally the patient's condition based on the progression.
That is why we have scales such as the Expanded Disability Scale to map, measure, keep track of this vast amount of data collected from MS clinics around the world.
If you disagree that's okay there is nothing absolutely nothing wrong with trying to overcome the symptoms affecting you.
Unfortunately with primary progressive MS there is nothing the doctors can provide to slow the progression not stop it but at least slow it down. In my opinion no matter how slow it progresses it always seems too fast.
Unlike what some scientists believe the different variations of the disease are at least according to me simple variations, inconsequential in the long term.
It appears for the most part the disease is nondiscriminatory in it's outcome. We can predict with near pinpoint accuracy the eventual outcome for 97% of persons afflicted with this disease. This in part thanks to statistical medicine which is nothing more than vasts amounts of data representing thousands of patient years.
This made possible given our current computer/database resources monitoring hundreds of thousands of patients with the same condition.
We end up with a fairly acurate prognosis.
Turns out it's a blueprint in essence one which spells out when the disease will progress, how long it will take to progress and finally the patient's condition based on the progression.
That is why we have scales such as the Expanded Disability Scale to map, measure, keep track of this vast amount of data collected from MS clinics around the world.
If you disagree that's okay there is nothing absolutely nothing wrong with trying to overcome the symptoms affecting you.
Unfortunately with primary progressive MS there is nothing the doctors can provide to slow the progression not stop it but at least slow it down. In my opinion no matter how slow it progresses it always seems too fast.
Yesterday I mentioned I had received a new piece of equipment. This device will facilitate our lives making it easier to remain
independent not having to rely on others when assistance is required while ensuring my spouse will not be injured in the process.
It is a piece of equipment I would associate with someone in their 70s or 80s certainly not for someone in their 50s but then this is multiple sclerosis there are no exclusions there is no rationale so if you must utilize something you would only see used in a long-term care facility then so be it you either learn to accept it or you go into denial. I've been in denial for too long have taken too many falls and have waited hours for help. I've gotten help from neighbors and my spouse in order to lift me when I do fall.
It is also inevitable that I will fall again however this time things should be easier.Meet Junior!
With a name like Junior you wouldn't expect it to set us back $3000 however it did, there goes this year's RRSP contributions.
Mind you with today's market it should be no problem for me to rise above the TSX or Dow Jones in this contraption.
Besides I remember one of my previous employers HR department wondering why I would need to worry about retirement I was on long-term disability? Makes plenty of sense to me doesn't it?
3 comments:
Hi Michael,
I think Junior is going to be an invaluable piece of equipment to have on hand. Anything that aids independent living, and makes life more comfortable is a good thing.
Karen,
I know you are right I'm just having a hard time accepting this piece of junk which to me belongs in an old folks home.
Dad,
I think you are very lucky to be able to have "junior" in your life and even better for you, in your home. but i can understand why your having a hard time with it. but just think of how much easier it will make things for you and Mom. you know if you ever need to vent im always home :)
love you!
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